Conference meeting - 14th May 2024
Bringing new products to patients that will meet their unmet needs most certainly qualifies as a complex project!
It takes many different people who bring different perspectives.
It takes many different organisations with different objectives.
If we can align on a shared purpose and build trust, plus apply some tips and tricks learned for past hits and misses, then we greatly increase our chance of success.
This was a Very engaging and informative meeting, in particular focusing on building alliances in complex and rare disease work.
Karen Skinner, from Lifearc (and a PIPMG Committee member) spoke in general terms on partnership excellence:
Laura Cowley from Patient Led Research Hub and Georgina Windsor from Cambridge Rare Disease Network (CamRARE) spoke further about a community approach:
Sarah Griffiths from Oxford PharmaGenesis spoke about the patient voice:
Lorna Griffin from RApport Global Strategic Services spoke about an inclusive approach to regulatory work
We also were grateful to hear from Karolina Brunet, from AstraZeneca.
There was great participation in workshops exchanging key learnings from our experiences of partnering and recommendations on balancing the different voices required for collective progress and impact.
Many thanks to Margaret McNaull and Julie Charlton, for organising.
Also a big thanks to our sponsors, Scale Space for providing an excellent venue
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